Monday, November 12, 2012

The Further Adventures of Sickly Kiera...

So, I haven't had the chance to update this in sooo long, I have a whole lot of stuff to write.  I'll try to chunk it into bite-size pieces in case you don't feel like reading it all at once  =)

Well, on October 3rd I went to my surgeon for a routine follow up.  I told him things were pretty much the same.  Abdominal pain, vomiting, tired, same ol' same ol'.  He decided that I looked terrible and said he was reserving a room for me at the hospital.  Do not pass Go. Do not collect $200.  Go straight to the hospital.

Crap.

I went from the doc's office, hurried home and packed a little hospital essentials bag, and got checked into my lovely viewless suite around noon.  My official diagnosis was "Malnutrition and Dehydration."  I was hooked up to an IV of fluids and settled in for an unknown period of time.  Sine I wasn't there for a surgery or any specific procedure, they let me wear my on pajamas instead of a hospital gown, so I was a little more comfy than the usual hospital stay.

After some tests and a CAT scan, more of my favorite Gastrograffin, and lots of failed attempts at eating hospital food, I ended up getting a PICC line again, and after a few days of fluids and PICC line nutrition (TPN), I was released on October 6th.

Now I have the whole TPN hooked up for 12 hours a day for nutrition and vitamins.  My visiting nurse comes out once a week to change the dressing, check the PICC, take blood work, and monitor my weight and fluid retention.  I seem to be retaining fluids in my lower legs.  Some days I have no ankles.  It's weird, but it doesn't hurt.  It's just annoying.  So, they keep adjusting the fluid levels in my TPN every few weeks.

One week after being release from the hospital, we went on a bit of a road trip.  The hubby and I had been planning this vacation for a year, and I wasn't going to miss it just because I had a stoopid PICC line to deal with.

I called the hotel where we had reservations to make sure we could get a fridge in our room.  The two-bed rooms usually don't have a fridge in them... The phrase "Medical Necessity" seemed to help that process.  My TPN and vitamins need to be kept in the fridge, so it really was a must.  The Clarion in Richmond, Virginia, was really great about it and the fridge was in the room and already cold when we arrived.  Win!

I need a bit of a rest, so the whole VaperCon adventure will be in my next update.  I promise to get this blog up to date in the next few days.

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