Saturday, July 30, 2011

Ponderings on pain and religion...

My pain level is off the charts today.  My surgeon gave me and Rx for liquid Dilaudid, and that's helping a bit, although it tastes like burning...  Ick!!  I'm gathering my thoughts and will try to keep my blog more updated, but damn, this desk chair hurts.

It's just a constant stabbing pain from my left side to my right.  If i cough, or sneeze, or move wrong, it turns into a ripping pain.  There's really nothing I can do about it til the tests results come back from my CT scan.

I'm wondering what i could have done to prevent this.  I'm wondering what i should have done instead.  I'm wondering if I should become a christian and ask for help, or become a catholic and figure i deserve this...

**shrugs** I guess I'll take another dose of Dilaudid and go sleepies...

Friday, July 29, 2011

Missing in Action: In a Nutshell...

Sorry I was missing for so long, but my sleeve and I were not getting along...

Sleeve surgery was May 23rd. All was well. I returned to work on June 19th.  By June 24th i was back out again.  I had been keeping less and less down, foods and fluids.  By the time i went back to the doctor on July 11th, i was keeping NOTHING down.  Not water.  Not anything.  In that span of time, i readjusted my diet, went backwards in my progression to purees and full liquids and even tried to do clear liquids.  I had cold stuff one day and warm stuff the next day.  Nothing kept me from vomiting everything back up.  I was exhausted and hurting and about to just give up when i went back to the surgeon.  I said i had no idea what was wrong, what was i doing wrong?!?!  I explained everything that was going on and the progression it had taken.  My doctor said he was calling the hospital for immediate admittance.

I got to the hospital that afternoon and found out that, clinically, i was starving and dehydrated.  My sleeve had begun to heal itself shut.  The scar tissue had built up, and the muscle itself had shrunk, so nothing was entering my stomach at all.  Everything just went down, sat at the top of my stomach, and then came back up.
I went through several EGD scope procedures with dilation balloons to try and reopen my stomach.  None of them was successful.  I was hooked up to a PICC IV line to get nutrition and fluids.  We reviewed all the procedures and tests and gastrographs and explored all kinds of options.  My surgeon has never even heard of this happening to such a degree.  I was in the hospital for 2 weeks.

Basically, after exhausting every other possibility, i had to undergo a revision surgery to turn my sleeve into an RnY full bypass.  It was the only thing that would save part of my stomach and let me be able to take in nutrition without the IV.  I was crushed.  I did not, DO NOT, want a full gastric bypass.  I cried for days.  I still do now and then.

Revision surgery was July 22nd.  I was released on July 24th after i drank fluids slowly overnight and kept down liquid medication for pain.  On the 24th, i was sore but soooo ready to go home.  The next day, i had a bit of a tickle in my throat and began coughing.  That's when the pain really hit me.  I now have a constant stabbing, ripping pain that runs from my left side to my right.  My whole diaphragm is killing me...all the time.  If i get up too fast, or cough, or sneeze it makes me cry.  i cant sleep.  I cant lie down.  Everything is uncomfortable.  I just had a full chest/abdomen/pelvic CT scan yesterday (July 28) so we can try and figure out whats going on.

This sucks.  This is not what was supposed to happen with my wonderful anticipated sleeve.  I never even considered a full gastric bypass.  Now I'm stuck with it. 

Excuse my language, but Buyer's remorse is a bitch.

**Details and rantings to follow as i start feeling up to it.